§146.420. Hemophilia Treatment Centers

 

Each Hemophilia Treatment Center must annually, in a format specified by the Department, attest that the services provided by the center include all of the following:

 

a)         Twenty-four hour attendance by a physician.

 

b)         A Core Team.

 

c)         An Extended Team readily available and accessible for evaluations or referrals.

 

d)         Pediatric hematology services.

 

e)         Dental program.

 

f)         Protocols for the management of complications of inherited bleeding disorders.

 

g)         Comprehensive psychosocial services and counseling.

 

h)         Genetic counseling and testing.

 

i)          Access to laboratory services.

 

j)          A comprehensive home infusion therapy program that provides instruction, ongoing education, monitoring and supervision by medical professionals experienced in the management of hemophilia.

 

k)         Twenty-four hour emergency services with written treatment protocols and a hematologist on-call.

 

m)        Twenty-four hour availability of, or accessibility to, all products for treating hemophilia and related bleeding disorders as recommended by the National Hemophilia Foundation Medical and Scientific Advisory Committee.

 

n)         Active collaboration with local, State and national hemophilia organizations to provide outreach and education.

 

o)         Established linkages with private, public and voluntary service organizations and health care providers to assure a full-range of services to meet clinical and psychosocial needs of the patient and the patient's family.

 

(Source:  Added at 29 Ill. Reg. 6967, effective May 1, 2005)